How We Use Your Data
We at Patient Discovery, as the makers of the Patient Pathfinder and My Amyloidosis Pathfinder (MAP) applications, handle a high volume of patient data. We take your privacy seriously and want you to easily understand what info is collected, how it’s used, and why.
Information, data, and privacy
Data we collect
Shared with your doctor/clinic?
Shared with for-profit companies (pharma & insurance)?
Shared with health researchers?
Shared with the authorities?
Personally Identifiable Information: data that could reveal your identity, like your name, date of birth, social security number, or contact info.
Protected Health Information: defined by HIPAA, this means data that reveals your past, present or future health (mental or physical), including your condition, provision, symptoms, or payments. This also include PII (above).
Statistics about the way you use our app, like how long you spend on a page or where you click. We use this to improve the app.
Info from any of the categories above that we’ve stripped of any identifiable info and combined (aggregated) with other users’ info.
As you use our apps, you’ll enter information about symptoms, treatments, questions you might have, and so on. While not all of this is info is PII/PHI, Patient Discovery handles and protects it in the same way.
How your Appointment Companion is shared
Your Appointment Companion (AC) contains information that may be sensitive, or considered PHI (above). Depending on your healthcare provider’s relationship with patient Discovery, and your preference, there are a few different ways that your AC can be used/shared by you and your care team:
AC shared automatically?
AC shared as email attachment?
Pre-appt email sent to you?
AC attached in your pre-appt email?
If Your Provider’s System Syncs With Our Apps
EHR-Integrated: your AC can be sent in the Electronic Health Record (EHR) system. We do this in partnership with Redox Engine.
If Your Provider Cannot Sync With Our Apps
Not EHR-Integrated: we can email a PDF copy of your AC to your provider. Patient Discovery emails are securely sent; providers have dedicated email inboxes for these emails.
With your consent*
With your consent*
*Note that disabling these emails will require you to send or bring a copy of these PDF to your appointments on your own.
This feature can be turned on/off at any time (after sign up) from the app dashboard:
- click on the user icon in the top left and select “Profile”
- Then select “Consent” from the tabs at the left
- Edit your consent settings